Scleroderma Clinical Program

New Scleroderma patients, please contact for an appointment:

Alice Anderson

Academic & Clinical Affairs Manager

72 E Concord Street, Evans, 5th Floor

Boston, MA 02118

Patients and Physicians (P) 617-358-6171

Patient referrals              (F) 617-358-6586

Since its inception, the program has evaluated over 1200 patients with scleroderma from around the world. Our multidisciplinary program is highly integrated with experts in many specialties, especially physicians focused on pulmonary fibrosis, pulmonary hypertension and gastrointestinal complications. Expert, individualized patient care is provided by senior physicians (Drs. Trojanowski, York, Bujor) with extensive experience in the care of scleroderma and its many facets. The multidisciplinary care team has partners in Pulmonary, Cardiology, Dermatology, Gastroenterology, Ob/Gyn, Orthopedics (hand specialist), Nutrition, among others, so that patients can receive all of their care by specialists with expertise in all aspects of scleroderma. Care is coordinated with the patient’s primary physician and with other providers when necessary.

For information on enrolling Clinical Trials, please contact Patricia Godio – pgodio@bu.edu 

The Scleroderma Program has two active trials that are open for enrollment.

• A Randomized, Double-blind, Placebo-controlled, Repeat-dose, Multicenter Trial to Evaluate the Efficacy, Safety, Tolerability and
  Pharmacokinetics of HZN-825 in Patients with Diffuse Cutaneous
• A Double Blind, Randomized, Placebo-Controlled Study to Evaluate the Efficacy and Safety of PRA023 in Subjects with Systemic Sclerosis
  Associated with Interstitial Lung Disease (SSc-ILD) PR200-104

For more information, please see the video below with Dr. Michael York on the diagnosis and treatment of scleroderma.