Save the Date: New England Regional Biennial Parkinson’s Conference

July 25th, 2012

The American Parkinson Disease Association Information & Referral Center at Boston University Medical Center presents the New England Regional Biennial Parkinson’s Conference. This two-day Conference will take place in Sturbridge, Massachusetts on November 4 & 5, 2012.

To view the save-the-date, please click here. More information will be available soon.

27th Huntington’s Disease Society of America Annual Convention

July 11th, 2012

Movement Disorder Center Social Worker Allyson Gormley, LICSW was selected by the Huntington’s Disease Society of American to receive a grant. This was provided by Lundbeck to attend the HDSA Professional Training Day specifically designed for social workers. The Professional Training Day was one part of the HDSA Annual Convention. Allyson met with other social workers from around the country. The day provided opportunity to address the specific support needs of individuals and families living with Huntington’s disease. Here at Boston University Medical Campus/Boston Medical Center, Allyson coordinates the Huntington’s Disease Clinic. Dr. Samuel Frank, the Huntington’s Disease Clinic Medical Director, also attended this convention and presented Clinical Trials Diplomat Training.

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Movement Disorder Specialist Dr. Anna Hohler works on program addressing military medical issues

July 11th, 2012

Anna Hohler groupAnna Hohler, MD represented Boston University Medical School in a program to help educate medical students about military medical issues including Post Traumatic Stress Disorder and traumatic brain injury. First Lady Michelle Obama participated in this important effort. Dr. Hohler was a Major in the US Army and completed her internship and residency during this time.

3rd Annual Edmond J. Safra Visiting Nurse Faculty Program

July 11th, 2012

Visiting nurse faculty at Boston University Medical Center

(left to right) Anne Carty, DNSc, RN; Denyse Turpin, MPH, RN; Michelle Siskind, MS, RN; Nancy Meedzan, DNP(c), MSN, RN; Susan Maciewicz, RN, MSN, CNE; Brianne Lienkamp, RN, MSN, ANP-BC; susan A. Larocco, PhD, RN, MBA; Keith Ciccone, BS, LPN; Cathi Thomas, MS, RN; Marie Saint-Hilaire, MD; Anna Hohler, MD

For the third consecutive year, the Edmond J. Safra Foundation has provided a grant to support an intensive educational program on Parkinson’s disease to nursing professionals. The goal of this program was to provide up-to-date information on the care needs of Parkinson patients to faculty. This information and experience can then be shared with students to better prepare them for their role as nurses. This year, six nursing faculty from Curry College, Rhode Island College, North Shore Community College, Mass Bay Community College, and Endicott College participated. The program was held June 25th to 28th.

Program content included signs and symptoms of PD, diagnosis, medical and surgical management,  the role of nursing and interdisciplinary care, basic science and clinical research, resources, and family care. Opportunity was provided to meet patients and family during actual clinic visits. Faculty spent one full day at Boston University’s Neurorehabilitation Center learning about the important role of exercise and other rehabilitative therapies. Each participant will work on a Parkinson’s disease independent project.

This Visiting Nursing Faculty (VNF) program was developed and successfully piloted in 2009 by Gwyn Vernon MSN, CRNP and Lisette Bunting-Perry, PhD(c), RN at the University of Pennsylvania. Cathi Thomas, MS, RN, CNRN served as BU’s program director. To learn more about the Safra Visiting Nurse Faculty visit www.parkinsonsnursing.com.

BUMC faculty present at the 16th Annual International Congress of Parkinson’s Disease & Movement Disorders

July 11th, 2012

BUMC Parkinson’s Disease and Movement Disorder Center faculty presented the following research studies at the 16th Annual International Congress of Parkinson’s Disease and Movement Disorders in Dublin, Ireland. Dr. Marie Saint-Hilaire, Dr. Anna Hohler, Cathi Thomas, MS, RN, and Terry Ellis, PhD, PT, NCS participated in this Congress.

A comparison of adverse events with monoamine oxidase inhibitors and catechol-o-methyl transferase inhibitors in combination with levodopa for patients with Parkinson’s disease.
R. Zhang, A.D. Hohler, M. Saint-Hillaire

SCA28: A novel gene mutation and clinical presentation in the oldest reported patient.
E.K. Orehek, A.D. Hohler

Feasibility of virtual exercise coach to promote walking in community dwelling persons with Parkinson’s disease
T.D. Ellis, N.K. Latham, T.R. DeAngelis, C.A. Thomas, M. Saint-Hillaire, K.L. Hendrom, T. Bickmore

Visual hallucinations in photographs of visual hallucinations in Parkinson’s disease.
O. Vaou, M. Saint-Hilaire, J. Friedman

The social self-management of Parkinson’s disease in daily life.
L. Tickle-Degnen, C. Thomas, M. Saint-Hilaire, E. Naumova, N. Ambady, T. Ellis, R. Wagenaar

Treatment of orthostatic hypotension in patients with idiopathic Parkinson’s disease or atypical parkinsonism improves motor, balance, and cognitive function.
D.E. Amariei, A.D. Hohler, D.I. Katz, T.J. DePiero, C.L. Hehl, A. Leonard, V. Allen, J. Dentino, M. Gardner, H. Phenix, M. Saint-Hilaire, T. Ellis

Fourth annual Parkinson’s Disease Forum takes place on April 13th

April 17th, 2012

Uri Eden, PhD presents his research at the 2012 PD ForumThe American Parkinson Disease Association Advanced Center of Research at Boston University and Boston Medical Center supported this year’s fourth annual Parkinson’s Disease Forum. This program, which took place on Friday, April 13th at Boston University’s Photonics Center, was organized by Dr. Ben Wolozin, Professor of Pharmacology and Neurology, Dr. Marie Saint-Hilaire, Associate Professor of Neurology and Medical Director of the APDA Advanced Center of Research, and Cathi Thomas, MS, RN, Program Director of the Parkinson’s Disease and Movement Disorders Center.

Researchers share ideas during breakout sessionsScientists and clinicians from across campus presented information on their research. Breakout sessions were designed to foster collaborations among different disciplines. Tara Guastella provided information on the Fox Trial Finder, an innovative online database connecting researchers to study subjects. The day ended with a poster session with contributions by many of the doctoral students conducting research in Parkinson’s disease and related disorders.

Special thanks to Ray James, BS, RN and Vanessa Blais for their support. To view the program please click here.

PD Forum OrganizersStudents display research during the poster sessionBoston University faculty and staff gather to discuss their Parkinson's disease research

New exercise study for people with Parkinson’s disease currently enrolling

February 22nd, 2012

The Center for Neurorehabilitation at Boston University’s Sargent College invites eligible individuals to participate in a new exercise study for people with Parkinson’s disease. Participants will be randomly assigned to take part in either an exercise program consisting of balance and walking exercises or an exercise program consisting of stretching and relaxing exercises. For more information, please click here or call Brita Orwoll at 617-353-7525.

Parkinson’s disease educational program to take place in Braintree

February 6th, 2012

Teva Neuroscience and the Massachusetts Chapter of the American Parkinson Disease Association will hold a free educational program on Wednesday, February 29th at Braintree Rehabilitation Hospital. Neurologist James Gilbert, MD will provide An Update on Parkinson’s Disease. Movement Disorder Specialist Samuel Ellias, PhD, MD will present An Overview of Treatment of Parkinson’s Disease Medical & Surgical Options. Dinner and reception will begin at 4:30pm and the program will run from 5:00 to 7:00pm.

Please click here to view the program flyer. Register now by contacting the APDA Information & Referral Center at (800) 651-8466 or information@apdama.org. RSVP is required.

Date: Wednesday, February 29, 2012

Time: 4:30pm to 7:00pm

Location: Braintree Rehabilitation Hospital – 2nd Floor Conference Room – 250 Pond Street – Braintree MA 02184

Research study investigating dyskinesia in Parkinson’s disease

December 19th, 2011

A new research study will investigate dyskinesia in individuals with Parkinson’s disease. For more information, please click here.

Parkinson’s Disease: A Practical Approach to Evaluation & Treatment for the Physical Therapist

December 19th, 2011

For Physical Therapists

Save the Date: Friday, April 20, 2012

Designed by physical therapists for physical therapists, this course will provide practical, evidence based knowledge on how to effectively evaluate and treat individuals with Parkinson’s disease. Terry Ellis, PhD, PT, NCS, Clinical Associate Professor at Boston University’s Sargent College and Associate Director of Clinical Care in the Center for Neurorehabilitation at Boston University, will present. 8 CEUs are available.

This program is presented by the Parkinson’s Disease Foundation in collaboration with the American Parkinson Disease Association.

For more information, please contact 800-457-6676 or ptherapy@pdf.org.

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April 26, 2013
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