Parkinson’s Disease Family Caregiver Evening taking place May 23rd in Braintree

April 26th, 2013

The Parkinson’s Disease Family Caregiver Evening will take place on Thursday, May 23, 2013 at Braintree Rehabilitation Hospital. Faculty from Boston University, Boston Medical Center, and other organizations will provide current information and resources to assist in providing care to family members or friends.

Please click here to view the program brochure. For more information and registration, contact the APDA Information & Referral Center at 800-651-8466 or information@apdama.org. Registration is required for this program.

Good Start Program in Parkinson’s Disease to take place March 27th and April 3rd at Sargent College

March 20th, 2013

The Good Start Program is a two part series presented by a team of Parkinson’s disease specialists from Boston University and Boston University Medical Center. This program is designed for individuals diagnosed with Parkinson’s in the last two years and their families. Participants will receive up-to-date information on diagnosis, treatment, and resources.

There is no cost for participation in this program, however registration is required. For more information, click here to see the program brochure. To register, contact 800-651-8466 or information@apdama.org.

Grateful patients give back to BMC

July 26th, 2012

The latest issue of Boston Medical Center’s Inspire magazine includes two wonderful articles on movement disorder patients giving back to BMC. Click here to view Inspire.

Dr. Marie Saint-Hilaire gives NPR interview on the Jumping Frenchmen of Maine

July 26th, 2012

Boston University Medical Center’s Marie Saint-Hilaire, MD provided an interview on the historical Jumping Frenchmen of Maine on NPR. To listen to the interview, please click here.

Dr. Samuel Frank to present at professional education series on Huntington’s disease

July 26th, 2012

Boston University Medical Center’s Samuel Frank, MD will be part of an educational series for physicians and primary care providers. This series is sponsored by the Huntington’s Disease Society of American (HDSA) and the Worldwide Education and Awareness for Movement Disorders (WE MOVE). To learn more about the course, please click here.

Save the Date: New England Regional Biennial Parkinson’s Conference

July 25th, 2012

The American Parkinson Disease Association Information & Referral Center at Boston University Medical Center presents the New England Regional Biennial Parkinson’s Conference. This two-day Conference will take place in Sturbridge, Massachusetts on November 4 & 5, 2012.

To view the save-the-date, please click here. More information will be available soon.

27th Huntington’s Disease Society of America Annual Convention

July 11th, 2012

Movement Disorder Center Social Worker Allyson Gormley, LICSW was selected by the Huntington’s Disease Society of American to receive a grant. This was provided by Lundbeck to attend the HDSA Professional Training Day specifically designed for social workers. The Professional Training Day was one part of the HDSA Annual Convention. Allyson met with other social workers from around the country. The day provided opportunity to address the specific support needs of individuals and families living with Huntington’s disease. Here at Boston University Medical Campus/Boston Medical Center, Allyson coordinates the Huntington’s Disease Clinic. Dr. Samuel Frank, the Huntington’s Disease Clinic Medical Director, also attended this convention and presented Clinical Trials Diplomat Training.

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Movement Disorder Specialist Dr. Anna Hohler works on program addressing military medical issues

July 11th, 2012

Anna Hohler groupAnna Hohler, MD represented Boston University Medical School in a program to help educate medical students about military medical issues including Post Traumatic Stress Disorder and traumatic brain injury. First Lady Michelle Obama participated in this important effort. Dr. Hohler was a Major in the US Army and completed her internship and residency during this time.

3rd Annual Edmond J. Safra Visiting Nurse Faculty Program

July 11th, 2012

Visiting nurse faculty at Boston University Medical Center

(left to right) Anne Carty, DNSc, RN; Denyse Turpin, MPH, RN; Michelle Siskind, MS, RN; Nancy Meedzan, DNP(c), MSN, RN; Susan Maciewicz, RN, MSN, CNE; Brianne Lienkamp, RN, MSN, ANP-BC; susan A. Larocco, PhD, RN, MBA; Keith Ciccone, BS, LPN; Cathi Thomas, MS, RN; Marie Saint-Hilaire, MD; Anna Hohler, MD

For the third consecutive year, the Edmond J. Safra Foundation has provided a grant to support an intensive educational program on Parkinson’s disease to nursing professionals. The goal of this program was to provide up-to-date information on the care needs of Parkinson patients to faculty. This information and experience can then be shared with students to better prepare them for their role as nurses. This year, six nursing faculty from Curry College, Rhode Island College, North Shore Community College, Mass Bay Community College, and Endicott College participated. The program was held June 25th to 28th.

Program content included signs and symptoms of PD, diagnosis, medical and surgical management,  the role of nursing and interdisciplinary care, basic science and clinical research, resources, and family care. Opportunity was provided to meet patients and family during actual clinic visits. Faculty spent one full day at Boston University’s Neurorehabilitation Center learning about the important role of exercise and other rehabilitative therapies. Each participant will work on a Parkinson’s disease independent project.

This Visiting Nursing Faculty (VNF) program was developed and successfully piloted in 2009 by Gwyn Vernon MSN, CRNP and Lisette Bunting-Perry, PhD(c), RN at the University of Pennsylvania. Cathi Thomas, MS, RN, CNRN served as BU’s program director. To learn more about the Safra Visiting Nurse Faculty visit www.parkinsonsnursing.com.

BUMC faculty present at the 16th Annual International Congress of Parkinson’s Disease & Movement Disorders

July 11th, 2012

BUMC Parkinson’s Disease and Movement Disorder Center faculty presented the following research studies at the 16th Annual International Congress of Parkinson’s Disease and Movement Disorders in Dublin, Ireland. Dr. Marie Saint-Hilaire, Dr. Anna Hohler, Cathi Thomas, MS, RN, and Terry Ellis, PhD, PT, NCS participated in this Congress.

A comparison of adverse events with monoamine oxidase inhibitors and catechol-o-methyl transferase inhibitors in combination with levodopa for patients with Parkinson’s disease.
R. Zhang, A.D. Hohler, M. Saint-Hillaire

SCA28: A novel gene mutation and clinical presentation in the oldest reported patient.
E.K. Orehek, A.D. Hohler

Feasibility of virtual exercise coach to promote walking in community dwelling persons with Parkinson’s disease
T.D. Ellis, N.K. Latham, T.R. DeAngelis, C.A. Thomas, M. Saint-Hillaire, K.L. Hendrom, T. Bickmore

Visual hallucinations in photographs of visual hallucinations in Parkinson’s disease.
O. Vaou, M. Saint-Hilaire, J. Friedman

The social self-management of Parkinson’s disease in daily life.
L. Tickle-Degnen, C. Thomas, M. Saint-Hilaire, E. Naumova, N. Ambady, T. Ellis, R. Wagenaar

Treatment of orthostatic hypotension in patients with idiopathic Parkinson’s disease or atypical parkinsonism improves motor, balance, and cognitive function.
D.E. Amariei, A.D. Hohler, D.I. Katz, T.J. DePiero, C.L. Hehl, A. Leonard, V. Allen, J. Dentino, M. Gardner, H. Phenix, M. Saint-Hilaire, T. Ellis

Directory|BUMC
November 18, 2013
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