2018 Speakers

Keynote Speakers

Monday October 22nd, 2018

Raymond Ownby, MD, PhD

Ownby, Ray

Dr. Raymond Ownby is Professor and Chair of the Department of Psychiatry and Behavioral Medicine at Nova Southeastern University where he is also a Professor in the Public Health and Biomedical Informatics Programs. He completed his undergraduate education at Ohio University where he was elected to membership in Phi Beta Kappa, and completed his medical education at the Northeastern Ohio Universities College of Medicine where he was elected to Alpha Omega Alpha. He has been selected for inclusion in Best Doctors in America and is board certified in Adult Psychiatry, Psychosomatic Medicine, Clinical Neuropsychology, and Neuropsychiatry. He has published more than 100 research articles and has been the recipient of several research grants from the National Institute of Health. In addition to leading the team that created the FLIGHT/VIDAS health literacy measure, at NSU he was awarded the Provost’s Research Award in 2014. His current research includes two projects funded by the National Institutes of Health. These include the development of a mobile app targeting older individuals with low health literacy, and is designed to help them improve their ability to manage chronic health conditions. The other project investigates whether the use of transcranial direct current stimulation in combination with computer-based cognitive training can improve cognitive problems in persons with HIV infections.

 

Tuesday October 23rd, 2018

Maricel G. Santos, EdD

Santos, Maricel GDr. Maricel G. Santos is a Professor of English at San Francisco State University, where she teaches in the M.A. in TESOL (Teaching English to Speakers of Other Languages) Program.  Her teaching and research areas include:  socio-cognitive dimensions of language acquisition, health literacy, and immigrant literacies.  From 2008-2013, she was a research fellow funded by a grant from the National Institutes of Health, Research Infrastructure in Minority Institutions (RIMI) program.  Her health literacy research explores ways that adult ESL participation serves as a health-protective factor in immigrant communities.  In collaboration with colleagues at the University of California-San Francisco, she explores the effects of peer support networks and innovative curricula on health literacy outcomes among immigrant adolescent and adult learners. Website: http://charm.ucsf.edu/people/maricel-santos  

 

 


Invited Speakers

Pre-Conference Workshops: Sunday October 21st, 2018, 4:00pm – 6:00pm

Invited Workshop I

Enhancing readiness to adopt health literacy best practices; “experiencing” the challenges of limited health literacy

Morris, Nancy

Nancy Morris, PhD, ANP is an Associate Professor at the University of Massachusetts Medical School Graduate School of Nursing.  She earned her PhD and Master’s in Nursing from Boston College.  In addition to her teaching and research responsibilities in the Graduate School of Nursing, Nancy works as an adult nurse practitioner in a Geriatric Medicine clinic as well as a Diabetes clinic. The concept of health literacy and its association to engaging in self-care and health outcomes is an integral component of her research, teaching and practice.

 

Alberti, Traci

Traci Alberti, PhD, FNP-BC is an Assistant Professor in the School of Health Sciences at Merrimack College.  Dr. Alberti earned her PhD in Nursing and Health Promotion through the University of Massachusetts Lowell and is a certified and practicing family nurse practitioner.  Her clinical practice has driven her research agenda which is focused on health literacy, provider communication, and patient, family and community health education.

 

 

 

 


Invited Workshop II

Common Ground for Healthcare

Hudson, Stanton

Stan Hudson is a health literacy expert and health policy analyst with 20 years of experience in health services research and 13 years of experience in health literacy with a focus on curriculum development. He earned an M.A. in Sociology from the University of Missouri and B.A.s in History, Political Science, and Sociology from Columbia College. Over the last decade he has led the development and implementation of health literacy education programs and curricula for consumers, health professionals, public health agents, consumer advocates, and health educators. In 2014, he became an NCCJ-Certified Diversity Facilitrainer and has been developing and implementing innovative inclusion and diversity workshops for education, health, public health professionals, and students that bridge cultural competency and health literacy.

 

Iona Staiculescu


Invited Panel A: Monday October 22nd, 2018, 9:15am – 10:45am

Improving prescription medication labels to help patient understanding and adherence through implementation of USP standards for patient-centered labels

Schwartzberg, Joanne v2

Joanne Schwartzberg, MD is a Clinical Assistant Professor of Preventive Medicine and Community Health at the University of Illinois’ Chicago College of Medicine and an Adjunct  Assistant  Professor in General Internal Medicine and Geriatrics at Northwestern University Feinberg School of Medicine.  Dr. Schwartzberg is a past-president of the Institute of Medicine of Chicago, the Illinois Geriatrics Society, and the American Academy of Home Care Physicians. Dr. Schwartzberg served as co-chair of the Illinois Delegation to the 1995 White House Conference on Aging, Caucus on Health and Social Services. She also served on the Advisory Committee of the 2005 White House Conference on Aging. From the start of her career, as a founder of the first multidisciplinary not-for-profit home health agency in the Midwest to her 22 years as Director of Aging and Community Health at the AMA to her current work at ACGME on evaluating the interprofessional educational programs and practices offered through residency programs across all specialties, Dr. Schwartzberg has successfully advocated for and created programs to improve the quality of health care for older Americans. At the AMA, she directed initiatives on medical education and geriatric competencies, practice management and geriatric care by design, older driver safety, medical management of the home care patient, health literacy, safe communication, and patient self management. Dr. Schwartzberg received the David H. Solomon Distinguished Public Service Award from the American Geriatrics Society on May 3rd, 2013.

 

University of Wisconsin-Madison School of Pharmacy faculty & staff portraits

David A. Mott, PhD, FAPhA, RPh is professor of Social and Administrative Sciences at the School of Pharmacy. He was born and raised in Madison, WI and received his BS-Pharmacy degree (1988), MS degree (1992) and PhD degree (1995) from the University of Wisconsin-Madison. He has been a professor at the UW School of Pharmacy for approximately 20 years and currently, he serves as the Chairman of the Social and Administrative Sciences Division in the School of Pharmacy. Dr. Mott is a Fellow of the American Pharmacists Association. Dr. Mott teaches pharmacy students about leadership roles in health care, operations and financial management of pharmacy practice, pharmacy practice law and regulation, measuring and improving the quality of pharmacy practice, and specialty pharmacy practice. Dr. Mott has been studying the pharmacy workforce for over 25 years and recently has been studying methods to reduce the risk of falling by older adults by focusing on the use of medications that are not safe for older adults to use.

 

Sparks, Steven

Steve Sparks, MS provides leadership for Wisconsin Health Literacy, a division of Wisconsin Literacy, Inc., a statewide nonprofit organization. In this role, he provides consultation and coordination for statewide health literacy strategies and programs. Steve has spent his career in health and health care communication. Before joining Wisconsin Health Literacy, he held marketing, communications, and community relations positions in four hospitals and health systems in Wisconsin, Iowa and Nebraska. Most recently he was Regional Director of Marketing and Public Relations for SSM Health of Wisconsin. He has taught communications courses at UW-Madison, Madison College and the University of Nebraska. He holds a master’s degree in journalism and mass communication and bachelor’s degree in English Education. Steve has conducted numerous health literacy and patient engagement training sessions with health care and health insurance professionals and led several health literacy interventions on public health issues. He currently leads a project to implement easier-to-understand prescription medication labels in Wisconsin.  He has been a presenter at all four nationally recognized health literacy conferences, including the Wisconsin Health Literacy Summit, which he coordinates.


Invited Panel B: Monday October 22nd, 2018, 9:15am – 10:45am

From Autonomy to Ally: Building Collaborative Capacity for a “Culture of Health Literacy”

Wagner, Teresa

Teresa Wagner, DrPH, MS, CPH, RD/LD, CHWI has a passion for helping people navigate healthcare. This passion was born watching her two young adult daughters trying to deal with medical issues in the current healthcare environment. As a result, she chose to do her Public Health Doctoral Residency focusing on Health Literacy at the University of Texas Center for Health Communication and Literacy Coalition of Central Texas (LCCT). While in her residency, she was hired by the LCCT as Director of Health Literacy serving in that role for almost 2 years. Dr. Wagner has a rich history as a health professional holding a Bachelor of Science degree in dietetics from Texas Christian University and a Master of Science degree in nutrition from Texas Woman’s University. She earned her Doctorate in Public Health from the University of North Texas Health Science Center (UNTHSC) where she is now an Assistant Professor and Senior Fellow in Health Literacy for the Institute for Patient Safety. She is a registered and licensed dietitian and has received both the “Media Award” and “Distinguished Scientist Award” from the Texas Academy of Nutrition and Dietetics. Dr. Wagner is also a member of the Texas Public Health Association (TPHA) serving as the TPHA liaison for National Alliance for Nutrition and Activity (NANA) coalition. She is Certified in Public Health and is a Certified Community Health Worker Instructor.

Tracy Adame

 

Howe, Carol jpeg

Carol Howe, PhD, RN, CDE is an Assistant Professor in Nursing at Texas Christian University.  She has been a diabetes educator for 20 years, working first as a CDE caring for children with diabetes and more recently as a nurse researcher.  Her research focuses on health literacy in diabetes education and prevention.  Her recent research includes an evaluation of Spanish language hypertension and diabetes patient education materials, a study on how parent and child health literacy affects understanding of health consequences of obesity, a study on diabetes educators’ communication skills for low health literate patients with diabetes, and a diabetes education intervention study in low health literate, Spanish speaking adults with prediabetes.

 

Lewis, Brennan 2

Brennan Lewis, MSN, RN, PCNS-BC, CPNP is the Director of Patient Education and Engagement for the Children’s Health, Children’s Medical Center located in Dallas, Texas. She serves as an expert in health literacy and provides oversight for the health education across the continuum of care. In her role, she chairs the Health Education And Literacy (HEAL) Committee and is responsible for the operations of the GetWellNetwork interactive patient care system. She is passionate about patient family education and engagement and works to ensure the patient family voice is present throughout Children’s Health. Brennan has been an active participant in the DFW Hospital Health Literacy Collaborative.

 

 


Invited Panel F: Monday October 22nd, 2018, 11:00am – 12:30pm

The making of policies for promoting health literacy – a global reflection

Paasche-Orlow, Michael

 

 

 

 

 

 

 

 

Levin-Zamir, Diane

Diane Levin-Zamir, PhDMPH, MCHES is the National Director of the Department of Health Education and Promotion of Clalit, Israel’s largest health service organization,  and Associate Professor at the School of Public Health of the University of Haifa. She also teaches at the Tel Aviv and Hebrew Universities Schools of Public Health in the Faculties of Medicine. Diane is a Summa Cum Laude graduate of Tufts University in Boston, and earned a MPH and PhD from the Braun School of Public Health of Hadassah Hospital and Hebrew University’s Faculty of Medicine in Jerusalem. Diane leads the Global Working Group on Health Literacy of the International Union of Health Education and Promotion and serves on the editorial board of the Global Health Promotion Journal. She was recently appointed as Chair of the National Council of Health Promotion of the Israel Ministry of Health. Diane specializes in action research in health promotion in community primary care, children and adolescents, people with chronic conditions, hospital and media settings, media and digital health literacy, and measuring health literacy on the population level. She was the principle investigator for the Israel National Health Literacy Survey and led the Israel participation in the Diabetes Literacy Consortium of the European Union. She specializes in health promotion policy, practice and research among special populations: children and adolescents, people with chronic conditions, health promotion in multi-cultural settings, elderly, and is active in promoting comprehensive and sustainable health promotion implementation on national and local levels. She teaches health promotion planning, evaluation and health literacy in medical, public health and health professionals training frameworks, as well as health promotion among children and adolescents.  Diane has published extensively on various aspects of health literacy and health promotion. She is one of the founding members of the Israel Association of Health Promoters and Educators and is an active member of the National Council for Health Promotion of Israel’s Ministry of Health. Diane is a Certified Health Education Specialist of the highest level (MCHES), is accredited health promotion professional by the IUHPE (EuHP) and is a member of the prestigious Phi Betta Kappa academic association.

Don Nutbeam

Pelikan, Juergen

Jürgen M. Pelikan, PhD is Professor emeritus for Sociology at University of Vienna (Austria), Director of the WHO Collaborating Centre for Health Promotion in Hospitals and Healthcare (www.hph-hc.cc/) at the Austrian Public Health Institute (Gesundheit Österreich GmbH) (juergen.pelikan@goeg.at, www.goeg.at). He was influential in initiating and shaping concept development, implementation and evaluation of the international Health Promoting Hospitals and Health Services network. As director of the EU-Project Migrant Friendly Hospitals – An European Initiative to Promote Health and Health Literacy for Migrants and Ethnic Minorities, he got interested in health literacy and helped to initiate the Health Literacy Survey – Europe (http://www.health-literacy.eu), where he was a member of the steering group and responsible for its data analysis and reporting. He was involved in a European FP7 project on Diabetes Literacy, an Austrian project on measuring health literacy of migrants and on the Vienna model and self-assessment instrument for Health Literate Health Care Organization, especially for hospitals. Actually he is co-chairing an international working group “HPH and Health Literate Health Care Organizations (HPH & HLO)”in the international network of Health Promoting Hospitals and Health Services and is co-chairing the Action Network on Measuring Population and Organizational Health Literacy (M-POHL) under the umbrella of WHO-Europe´s European Health Information Initiative (EHII).

Rowlands, Gill

Gill Rowlands is a Professor of General Practice (Family Medicine) in the Institute of Health and Society, Newcastle University. Her main research interests are the role of health literacy in health, the role of Family Physicians in identifying and addressing the problems faced by patients with lower health literacy, and the development of evidence-based policy. She founded the Health Literacy Group UK, and is an active member of the IUHPE Global Working Group on Health Literacy and the International Health Literacy Association. She is co-clinical advisor on Health Literacy to NHS England. She has published over 70 publications in peer-reviewed journals, co-edited a book ‘Health Literacy in Context: International Perspectives’, co-authored two chapters in Health literacy: new directions in research, theory, and practice (IOM Press), and led an evidence synthesis on Health Literacy Policy for the Health Evidence Network (World Health organisation Europe).

Sorensen, Kristine

Kristine Sørensen, PhD is committed to advance the global scope of health literacy. She is the founder of the Global Health Literacy Academy and advisor for international organizations such as i.e. the European Commission, the World Health Organization and McKinsey. She has co-founded a number of national and regional health literacy networks and she is currently the executive chair of Health Literacy Europe and president of the International Health Literacy Association. With colleagues she has received the European Health Award (2012) and the International Health Literacy Award (2017) for the societal impact of her work. For more information www.globalhealthliteracyacademy.org

 


Invited Panel D: Monday October 22nd, 2018, 11:00am – 12:30pm

Librarians’ Health Literacy Outreach Projects: Community and Clinical Collaborations

LaValley, Susan

Susan LaValley, MLS, MA, NRSA is a NRSA T32 Postdoctoral Research Fellow at the Primary Care Research Institute, Department of Family Medicine at the University at Buffalo. Her current research seeks to understand the processes underlying information behaviors in the healthcare context, including patient-provider information exchanges and caregiver information-seeking on behalf of patients while navigating care systems. As a trained medical librarian and social scientist, Dr. LaValley used mixed methods and interdisciplinary approaches to examine health information seeking processes.

 

GRIER, PJ

PJ Grier, MPA, MLIS is Associate Director for Operations & Assessment at the Philadelphia College of Osteopathic Medicine – O.J. Snyder Memorial Library.  In addition to the library’s focus on academics, student learning and faculty research, PJ is a proponent of expanding the library’s mission to include patient education frameworks that meet the needs of the College’s 17000+ patients.  His past work included building a complex statewide consumer health information network, a clinical information delivery consortium for community hospitals and a survey of hospital librarians’ e-resources purchasing habits. He holds master’s degrees in library & information sciences and public administration as well as a certificate in clinical informatics.

 

Kaur, Amanpreet

Aman Kaur, CFCS, MLIS is the inaugural Community Health & Engineering Librarian at Penn Libraries. As part of the Biomedical Library‘s Information Services team, she provides reference and instructional services. She also coordinates for the Inter-Professional Student Advisory Gatherings, the Penn Libraries’ interprofessional networking event series geared towards health sciences students. For the rapidly growing School of Engineering and Applied Science, Aman assists with collection development and liaison services. In addition to working on Penn Libraries’ strategic initiatives including Library Lounge and Expertise@Penn, Aman is engaged in planning community health outreach initiatives in collaboration with the Sayre Health Center, the Free Library of Philadelphia, the Philadelphia FIGHT Critical Path Learning Center (formerly the AIDS Library), Penn Nursing, and Penn Medicine. Aman is the 2018 Chair of the Group On Library Diversity (GOLD), which received the inaugural Campus Diversity Award for a Notable Cultural Contribution in 2017, an award given by a coalition of multicultural student organizations. Before coming to Penn, Aman worked as a Research Assistant for Reference & Instruction and the Outreach & Engagement Intern at the Rutgers University Libraries. She also completed work as an intern at the Rutgers Cancer Institute of New Jersey Resource & Learning Center, earning the 2015 Health Sciences Library Association of New Jersey student award for her outstanding work there. Aman also served in the 2013 – 2014 Literacy AmeriCorps of Palm Beach County, where she developed Adult Literacy Services for the Boynton Beach City Library. She holds a Master of Library and Information Science degree from Rutgers. From Iowa State, she holds a B.S. in Family & Consumer Sciences Education & Studies, with a minor in Engineering Studies. Aman currently holds secondary school teaching certifications. In April 2018, Aman became one of the 2018 Iowa STATEment Makers for Career Achievement, an honor given to young alumni by the Iowa State University Alumni Association.


Lunchtime Sessions: Monday October 22nd, 2018, 12:30pm – 1:45pm

Special Interest Group I

Nursing Research in Health Literacy: Developing and Sustaining a Research Program

Deupree, Joy

Joy P. Deupree, PhD, CRNP is Director of Community Engagement and an Assistant Professor at the UAB School of Nursing where she serves as a consultant for research and doctoral studies with a focus on promotion of health and healthcare for underserved and vulnerable populations. For and for 18 years has taught an interprofessional campus-wide course and conducts workshops for educational sessions on the topic of health literacy. Dr. Deupree established the Alliance of International Nurses for Improved Health Literacy in 2012; the mission of the organization is to advance the health literacy research agenda by nursing to create successful nursing interventions; improve quality of patient care for low literate populations; and to promote educational standards for nurses who care for low literate populations.  In 2015, as a gubernatorial appointee to the Alabama Health Care Improvement Task Force, Dr. Deupree garnered support for the establishment of the Alabama Health Literacy Initiative of and serves as the Chair of the Initiative. Previously, Dr. Deupree earned a master’s degree in women’s health nursing, and a BSN from UAB School of Nursing, Birmingham, Alabama. She earned her PhD for Health Promotion/Health Behavior in 2011 via a joint program from the Schools of Public Health and Health Education at UAB and the School of Human Studies at the University of Alabama, Tuscaloosa, Alabama.

 

Alberti, Traci

Traci Alberti, PhD, FNP-BC is an Assistant Professor in the School of Health Sciences at Merrimack College.  Dr. Alberti earned her PhD in Nursing and Health Promotion through the University of Massachusetts Lowell and is a certified and practicing family nurse practitioner.  Her clinical practice has driven her research agenda which is focused on health literacy, provider communication, and patient, family and community health education.

 

 

 

 

Howe, Carol jpeg

Carol Howe, PhD, RN, CDE is an Assistant Professor in Nursing at Texas Christian University.  She has been a diabetes educator for 20 years, working first as a CDE caring for children with diabetes and more recently as a nurse researcher.  Her research focuses on health literacy in diabetes education and prevention.  Her recent research includes an evaluation of Spanish language hypertension and diabetes patient education materials, a study on how parent and child health literacy affects understanding of health consequences of obesity, a study on diabetes educators’ communication skills for low health literate patients with diabetes, and a diabetes education intervention study in low health literate, Spanish speaking adults with prediabetes.

 


Special Interest Group II

Understanding the Toolshed 

Manganello, Jennifer

Jennifer Manganello, PhD is on the faculty of the University at Albany School of Public Health. She is a health communication scholar who incorporates theories, concepts, and methods from the fields of public health and communication. Her research focuses on health literacy, especially as it relates to adolescents and young adults. She has published her work in journals such as the Journal of Health Communication, Public Health Management and Practice, Journal of Children and Media, and Public Health Nutrition. Before starting at UAlbany, Dr. Manganello was a Post-Doctoral Research Fellow at the Annenberg Public Policy Center, University of Pennsylvania, where she is currently a Distinguished Research Fellow. She earned her Ph.D. from the Department of Health Policy and Management at the Johns Hopkins Bloomberg School of Public Health.

Katherine Waite


Invited Panel E: Monday October 22nd, 2018, 3:45pm – 5:15pm

Conducting assessments with diverse populations: Assessment across language, cultures, education, and health literacy

Griffith, James

James W. Griffith, PhD is a clinical psychologist focused on research an optimising assessment experience for the patient. This includes the application of psychometrics to clinical problems, studying new approaches to symptom assessment include mobile apps, and accommodating diverse populations including people with low health literacy. My entire career has focused on clinical research. I have published many scientific papers on diverse topics including the relationships between autobiographical memory, depression, and rumination, psychological comorbidities in people with urology patients with chronic pain, and the development of novel questionnaires including the Emotional Attentional Control Scale. This work has appeared in top journals including Psychological Assessment and The Journal of Urology. My work has been internationally recognised resulting in multiple guest professorships at universities including KU Leuven, Université Paris Diderot, and Universidad de Castilla-La Mancha. In additional to my research at Northwestern University in the Department of Medical Social Sciences, I am also a practicing clinician specialising cognitive behavioural therapy (CBT) for patients with mood and anxiety disorders.

 

Duracinsky, Martin

Martin Duracinsky, MD, PhD is clinician in the Internal Medicine & Clinical Immunology Department of Bicetre hospital (Assistance Publique – Hôpitaux de Paris). He teaches methodology of clinical research at Paris-Diderot University. As a researcher, his main research topic is on Patient-Centered Outcomes and new modes of administration (electronic, ePRO, ecohort). He has developed and validated several Patient-Reported Outcomes questionnaires, among them the specific symptoms and quality of life PROQOL-HIV questionnaire for people living with HIV in 9 countries. He is responsible of the unit “Methodological assessment of clinical endpoints, Patient-Centered Outcomes Research” within the Paris-Diderot University research team: EA 7334 REMES, Recherche Clinique ville-hôpital, Méthodologies & Société. Among current projects, he leads several international validation studies with Brazil and Australia, such on quality of life in patients with viral hepatitis C, and on sexual dysfunction and a project to optimize the screening strategy of infectious diseases (Tuberculosis, HIV, hepatitis B and C) among migrants in France. He currently supervises a PhD student (2015-2018), and he supervises several students in master, and in thesis of medicine and pharmacy.

 

Hahn, Elizabeth 2

Elizabeth Hahn is a medical sociologist whose research involves patient-reported outcomes in chronic illness, and the design and use of health information technology, with a focus on underserved populations, health literacy and health equity. Her research includes the development of novel multimedia tools for survey administration, health literacy measurement and communication of health information for patients with varying literacy, language and computer skills. She is Associate Professor in the Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, and Director of the Outcomes Measurement and Survey Core, a shared resource for the Robert H. Lurie Comprehensive Cancer Center of Northwestern University.

 

Taple, Bayley

Bayley J. Taple, MS is in her third year of the Clinical Psychology PhD Program at Northwestern University Feinberg School of Medicine in Chicago, Illinois. She is interested in bridging the gap between health psychology research and clinical practice, as well as increasing access to mental health care by integrating clinical psychology into the medical setting. As such, her current research involves participating in multidisciplinary teams and evaluating evidence-based assessment for physical and mental health. Another area of her research incorporates psychological treatment for patients with urological issues. In addition, she provides assessments and brief therapy for patients as part of the Northwestern Behavioral Medicine Practicum.

 

Thonon, Frederique

Frédérique Thonon, PhD is a researcher in public health. She defended her PhD on how to evaluate the impact of translational research in terms of patients’ benefits in 2016. She currently works as a senior project manager on a large study evaluating screening programs of infectious diseases amongst migrants.

 

 

 

 


Invited Panel C: Tuesday October 23rd, 2018, 9:45am – 11:15am

National Data on Health Literate Care: An Introduction to Public Use Health Literacy Data from MEPS

Brach, Cindy

Cindy Brach, MPP is a Senior Health Care Researcher at the Agency for Healthcare Research and Quality (AHRQ). She conducts and oversees research on health literacy, cultural and linguistic competence, quality improvement, Medicaid, and the State Children’s Health Insurance Program. Cindy leads AHRQ’s health literacy activities, coordinating the Agency’s work in developing measures, improving the evidence base, and creating implementation tools. Cindy’s health literacy projects have included the development of the AHRQ Health Literacy Universal Precautions Toolkit, CAHPS® Item Sets for Addressing Health Literacy, AHRQ Informed Consent and Authorization Toolkit for Minimal Risk Research, and the Patient Education Materials Assessment Tool (PEMAT). She has served on the National Academy of Medicine’s Roundtable on Health Literacy, where she led an effort to define the ten attributes of a health literate organization. Cindy is also AHRQ’s point person for cultural and linguistic competence. Cindy has served on the National Project Advisory Committee to enhance the National Standards for Culturally and Linguistically Appropriate Services, on the HHS’ Language Access Steering Committee, and the DiversityRx National Advisory Group. In addition to overseeing the development of the TeamSTEPPS Limited English Proficiency (LEP) Module, Cindy commissioned and co-authored the Re-engineered Discharge Toolkit to address the needs of diverse patients. Cindy’s work on Medicaid and SCHIP notably includes overseeing the five-year evaluation of the CHIPRA Quality Demonstration Grant Program. She also led the Child Health Insurance Research Initiative (CHIRI™) a public-private partnership. Cindy has also worked on improving chronic care, overseeing the development of Integrating Chronic Care and Business Strategies in the Safety Net: A Toolkit for Primary Care Practices and Clinics, and co-authoring The Practice Facilitation Handbook: Training Modules for New Facilitators and Their Trainers. She is currently a team member of EvidenceNOW, an initiative that helps smaller practices build capacity to deliver evidence-based care.

Jeffrey Rhoades


Invited Panel G: Tuesday October 23rd, 2018, 9:45am – 11:00am

Multiple-Disciplinary Teams Strengthen Health Literacy Research and Practice, At the Bedside and Beyond

Witman, Lydia

Lydia Witman, MLIS is a medical librarian specializing in consumer health information and health literacy. She currently manages the Patient & Family Library service at the UVA Health System, and chairs the health system’s Health Literacy Workgroup, a subset of the larger Patient & Family Education Committee. Over the past 10 years working in hospitals and health systems, she has educated hundreds of health care providers and staff about the importance of clear communication, and helped raised awareness about health literacy. Recently, she received two grants from the NLM/NIH for community-based health literacy interventions in partnership with local and regional non-profit and public service organizations. She is exploring the possibility of research into outcomes associated with “Information Prescription” orders placed by clinicians at the bedside.

Cutilli, Carolyn

Carolyn Cutilli, PhD, RN is a patient education specialist at The Hospital of the University of Pennsylvania and Co-chair of the HUP Patient and Family Education Committee.    She spearheads patient and family education initiatives at the unit through corporate levels. She is president-elect of the Health Care Education Association (HCEA) and Co-chair of the HCEA patient education guidelines workgroup.   Her research focuses on geriatric health literacy.  Carolyn has published numerous articles and a book chapter and spoken nationally and internationally on health literacy and evidence-based patient and family education strategies. She received the Hospital of the University of Pennsylvania Nursing Excellence Award for Patient and Family Education and the Eastern Pennsylvania Arthritis Foundation Public Educator Award.

Lake, Erica

Erica Lake, MLS, AHIP joined the team at the Spencer S. Eccles Health Sciences Library in 2011 as an Associate Librarian, and as the Associate Director of the Hope Fox Eccles Health Library.  As Associate Director, Erica provides consumer health information services and resources for the University of Utah Health Care system, the University of Utah campus, and the greater Salt Lake Valley community. Prior to this position, she was a Senior Medical Librarian at Intermountain Healthcare for 11 years, providing clinical library services for three hospitals in the region. Erica earned her Masters in Library Science at Indiana University, and has worked in academic, public, and special libraries.  Throughout her 16 year medical library career, Erica has worked to create gateways for consumers and clinicians to access evidence-based health care information, and has taken leadership roles in coordinating organization-wide availability of online resources. She is currently involved in a wide range of projects and initiatives with clinicians, bioinformaticists, university faculty, public librarians, community partners, and local organizations. These include researching the effect health information provision has on patient outcomes and engagement, building organizational patient education information infrastructure, and integrating library services into the EHR and PHR.


Invited Panel H: Tuesday October 23rd, 2018, 12:30pm – 2:00pm

Redirecting Health Literacy Efforts to Bridge Existing Health Information and Health Literacy Gaps Among People with Disabilities

 

McKee, Mike

Michael McKee, MD, MPH is a family physician with clinical and research expertise in disability health. As a physician with a hearing loss, he is especially interested in advocating for the rights of Deaf and hard of hearing patients to obtain equitable health care. His research focus includes health disparities for individuals with various disabilities, health information accessibility, health literacy, and telemedicine applications. He is also interested in the application of eye trackers and mixed methodologies to study how individuals acquire health information through visual and incidental learning opportunities. Dr. McKee is the immediate past president of the Association of Medical Professionals with Hearing Losses (AMPHL).

 

 

Harrison, Tracie

Tracie Harrison, PhD, RN, FAAN is a Professor at The University of Texas at Austin School of Nursing, where she studies aging with disability and the policy outcomes and implications of disability. Her work with people with visual impairment has been an area of struggle and fascination for her, as it has the potential to spark new ways of thinking about information access and processing in healthcare. Harrison trained as a pre- and post-doctoral fellow in gerontological nursing through the Hartford Foundation, NIH/NRSA, and a Donald D. Harrington Scholars award. She has over 50 publications on how severe, permanent disabilities, affect people’s lives focusing on the perspective of diverse populations. Her research, funded by federal, private, and state agencies, is also concerned with the long-term services and supports provided. Harrison served as an American Political Science Association Congressional Fellow through the Health and Aging policy fellows program. She worked in the Office on Disability and Administration on Aging as it combined into the Administration on Community Living. She is the founding director of the Center for Excellence in Aging Services and Long Term Care at The University of Texas at Austin School of Nursing.

 

Havercamp, Susan

Susan Havercamp, PhD, FAAIDD Associate Professor of Psychiatry, Psychology, and Genetic Counseling, received her doctorate in Intellectual and Developmental Disability psychology. Dr. Havercamp’s current research and clinical interests focus on physical and mental health issues in people with disabilities, especially developmental disabilities. She has contributed to health surveillance activities, health promotion programs, and health care provider education to improve the health and health care for children and adults with disabilities. Dr. Havercamp is the Principal Investigator of the Centers for Disease Control and Prevention (CDC) funded Ohio Disability and Health Program (ODHP), a partnership between the Ohio Department of Health and Ohio’s two University Centers of Excellence in Developmental Disabilities. She is a consulting editor for Intellectual and Developmental Disabilities and the book review editor for the Journal on Mental Health Research in Intellectual Disabilities. She is currently chairing an Administration on Community Living workgroup to improve health surveillance of individuals with IDD.

 

 

Smeltzer, Suzanne

Suzanne C. Smeltzer, RN, EdD, ANEF, FAAN is the Richard and Marianne Kreider Endowed Professor for Nursing of Vulnerable Populations at the M. Louise Fitzpatrick College of Nursing at Villanova University. She has conducted research related to health issues of individuals with disabilities, with a focus on pregnancy and reproductive health. She has published widely on the topic. She was also instrumental in the development of the National League for Nursing’s Advancing Care Excellence for Individuals with Disabilities (ACE.D), which provides extensive teaching materials (unfolding case studies, videos, guidelines) to prepare nursing faculty members to integrate issues that affect the health of individuals with disabilities.

 

 

 


Invited Panel I: Tuesday October 23rd, 2018, 12:30pm – 2:00pm

Integrating Health Literacy into Diverse Organizations in the Health Care Continuum

Renee Jenkins

Bauer, Tom

Thomas K. Bauer is the Senior Director of Patient and Family Education at Johns Hopkins Medicine. Mr. Bauer is a leading authority, speaker and advocate for health literacy and patient education programs to improve cost, quality and satisfaction, with his research being presented in over 40 publications or presentations. His work has been recognized by the Health Literacy Roundtable at National Academy of Science for the successful deployment of health literacy tactics addressing the 10 attributes of a health literate organization, and has been featured  in two case studies be published the Agency for Healthcare Research and Quality (AHRQ).

 

 

Formal Portrait of Laurie Myers 2017

Laurie Myers has led Merck’s health literacy efforts in support of improved patient communications, including medication labeling, packaging, clinical trial materials, lay summaries, and patient education for the past 8 years. Laurie has worked to include respondents with low health literacy into patient labeling research, which earned her and her team an IHA national health literacy award.  She works and speaks internationally, aiming to increase awareness of the importance of health literacy especially in policy.  She has co-chaired two US working groups on lay summaries and health literacy in clinical trials, at the MRCT (Multi-Regional Clinical Trials Center of Brigham and Women’s and Harvard).  She served as an invited member of the EMA lay summaries working group, where she helped to influence final EU guidance to reflect principles of health literacy, numeracy, and readability.  She did a plenary session at the 2017 Asia Health Literacy Conference and will speak soon at Symposium Anvisa-Sindusfarma-IPS/FIP 2018 in Brazil. She was an invited speaker by the FDA at a 2017 labeling conference, with an international audience of over 2000 people in 42 countries. She has co-authored five publications, and serves on the US National Academies Health Literacy Roundtable.  She has a Bachelor’s degree from Yale and an MBA from Wharton.

 

Rush, Steven 2

Steven Rush is a licensed psychologist and director of the UnitedHealth Group Health (UHG) Literacy Innovations Program. He has led or contributed to: implementation of health literacy best practices into UnitedHealth Group programs and services; provision of health literacy awareness and skills training; and edits the UnitedHealth Group Just Plain Clear® Glossary.  He has authored health literacy articles, posters and platform presentations. Steve won an award for Clinical Leadership and Collaboration on a UnitedHealth Group health literacy and medication adherence project.  He has also served as an abstract reviewer for the HARC health literacy conference.

 

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October 17, 2018
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