Patient Resources for Amyloidosis
Receiving a diagnosis of amyloidosis can leave you with many questions or looking for support from other people who also have or understand your disease. Check out this link to access information and the support groups: https://www.amyloidosissupport.org/
“The Amyloidosis Foundation provides support to amyloidosis patients and their families while promoting research, education and awareness.” Check out this link to access information and the support groups:https://amyloidosis.org/
Amyloidosis Research Consortium
The mission of the Amyloidosis Research Consortium is to “change the way research is being done and focus on what will have the greatest impact on improving the lives of patients.” They focus on accelerating diagnosis, advancing research, accessible treatment, and lastly supporting patients. Check out this link to access the information: https://arci.org/
- Access education on what amyloidosis is here: https://arci.org/about-amyloidosis/
- For information on AL amyloidosis: https://arci.org/about-amyloidosis-old/al-amyloidosis/
- For more information on AL amyloidosis click here for their booklet:https://arci.org/wp-content/uploads/2021/03/Disease-Overview_AL-Amyloidosis.pdf
- For information on treatment for AL amyloidosis click here for their booklet: https://arci.org/wp-content/uploads/2021/03/Treatment-Overview_AL-Amyloidosis.pdf
- For information on Hereditary ATTR (hATTR) amyloidosis: https://arci.org/about-amyloidosis-old/hereditary-attr-amyloidosis/
- For more information on Hereditary ATTR amyloidosis click here for their booklet: https://arci.org/wp-content/uploads/2021/03/Disease-Overview_hATTR.pdf
- For more information on treatment for Hereditary ATTR amyloidosis click here for their booklet: https://arci.org/wp-content/uploads/2021/03/Treatment-Overview_hATTR.pdf
- For information on AL amyloidosis: https://arci.org/about-amyloidosis-old/al-amyloidosis/
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- For information on Wild-type (ATTRwt) amyloidosis: https://arci.org/about-amyloidosis-old/hereditary-attr-amyloidosis/
- For more information on Wild-type amyloidosis and about treatment click here for their booklet: https://arci.org/wp-content/uploads/2021/03/Disease-and-Treatment-Overview_ATTRwt.pdf
- For information on other type of amyloidosis: https://arci.org/about-amyloidosis-old/other-types-of-amyloidosis/
- For information on Wild-type (ATTRwt) amyloidosis: https://arci.org/about-amyloidosis-old/hereditary-attr-amyloidosis/