{"id":145848,"date":"2026-07-30T10:33:36","date_gmt":"2026-07-30T14:33:36","guid":{"rendered":"https:\/\/www.bumc.bu.edu\/camed\/?post_type=bu-article&#038;p=145848"},"modified":"2026-07-30T10:34:03","modified_gmt":"2026-07-30T14:34:03","slug":"new-research-identifies-barriers-transgender-individuals-face-related-to-breast-cancer-risk","status":"publish","type":"bu-article","link":"https:\/\/www.bumc.bu.edu\/camed\/news-events\/articles\/2026\/new-research-identifies-barriers-transgender-individuals-face-related-to-breast-cancer-risk\/","title":{"rendered":"New Research Identifies Barriers Transgender Individuals Face Related to Breast Cancer Risk"},"content":{"rendered":"\n<p><\/p>\n\n\n\t<div class=\"wp-block-editorial-leadin news-block-editorial-leadin is-style-text-over-image has-media has-media-focus-center-middle has-text-position-x-center\">\n\t\t<div class=\"container-lockup\">\n\n\t\t\t<div class=\"wp-block-leadin-media\">\n\t\t\t\t\n\t\t\t\t<img width=\"6000\" height=\"4000\" src=\"\/camed\/files\/2026\/07\/rainbow-flag.jpg\" class=\"\" alt=\"Rainbow flag blowing in wind being held by hands\" loading=\"lazy\" srcset=\"https:\/\/www.bumc.bu.edu\/camed\/files\/2026\/07\/rainbow-flag.jpg 6000w, https:\/\/www.bumc.bu.edu\/camed\/files\/2026\/07\/rainbow-flag-636x424.jpg 636w, https:\/\/www.bumc.bu.edu\/camed\/files\/2026\/07\/rainbow-flag-1024x683.jpg 1024w, https:\/\/www.bumc.bu.edu\/camed\/files\/2026\/07\/rainbow-flag-768x512.jpg 768w, https:\/\/www.bumc.bu.edu\/camed\/files\/2026\/07\/rainbow-flag-1536x1024.jpg 1536w, https:\/\/www.bumc.bu.edu\/camed\/files\/2026\/07\/rainbow-flag-2048x1365.jpg 2048w, https:\/\/www.bumc.bu.edu\/camed\/files\/2026\/07\/rainbow-flag-540x360.jpg 540w, https:\/\/www.bumc.bu.edu\/camed\/files\/2026\/07\/rainbow-flag-1080x720.jpg 1080w, https:\/\/www.bumc.bu.edu\/camed\/files\/2026\/07\/rainbow-flag-1500x1000.jpg 1500w, https:\/\/www.bumc.bu.edu\/camed\/files\/2026\/07\/rainbow-flag-900x600.jpg 900w, https:\/\/www.bumc.bu.edu\/camed\/files\/2026\/07\/rainbow-flag-450x300.jpg 450w, https:\/\/www.bumc.bu.edu\/camed\/files\/2026\/07\/rainbow-flag-600x400.jpg 600w\" sizes=\"(max-width: 6000px) 100vw, 6000px\" \/>\n\t\t\t\t\t\t\t<\/div>\n\n\t\t\t\t\t\t\t<p class=\"wp-block-editorial-leadin-caption wp-prepress-component-caption\">Photo by <a href=\"https:\/\/unsplash.com\/@raphi_rawr?utm_source=unsplash&amp;utm_medium=referral&amp;utm_content=creditCopyText\">Raphael Renter | @raphi_rawr<\/a> on <a href=\"https:\/\/unsplash.com\/photos\/people-holding-flags-during-daytime-wuxdtGMNYaU?utm_source=unsplash&amp;utm_medium=referral&amp;utm_content=creditCopyText\">Un<\/a>splash.<\/p>\n\t\t\t\n\n\t\t\t\n\t\t\t\t<div class=\"container-words-outer\">\n\n\t\t\t\t\t\n\t\t\t\t\t<div class=\"container-words-inner\">\n\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"wp-prepress-tag\">Research<\/span>\n\t\t\t\t\t\t\t\t<h1 class=\"head\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<strong>New Research Identifies Barriers Transgender Individuals Face Related to<\/strong> <strong>Breast Cancer Risk<\/strong>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/h1>\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t<h4 class=\"deck\"> <em>Goal is to reduce the informational barriers that prevent transgender people from making informed decisions about their health<\/em>.<\/h4>\n\t\t\t\t\t\t\n\t\t\t\t\t<\/div>\n\n\t\t\t\t<\/div>\n\n\t\t\t\n\t\t<\/div>\n\n\t\t\n\t<\/div>\n\n\t\n<div class=\"wp-prepress-component-metabar js-block-editorial-metabar news-prepress-layout-metabar\">\n\t<div class=\"wp-prepress-component-metabar-wrapper\">\n\t\t\t\t\t<div class=\"wp-prepress-component-metabar-date\">July 30, 2026<\/div>\n\t\t\n\t\t\t\t<div class=\"wp-prepress-component-metabar-credits\">\n\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"wp-prepress-component-metabar-share js-bu-prepress-share-tools\">\n\t\t\t<span class=\"icon-twitter\"><span>Twitter<\/span><\/span>\n\t\t\t<span class=\"icon-facebook\"><span>Facebook<\/span><\/span>\n\t\t\t<span class=\"icon-action\"><\/span>\n\t\t<\/div>\n\t<\/div>\n<\/div>\n\n\t\n\n\n<p class=\"has-drop-cap\">Transgender and gender diverse (TGD) individuals experience significant healthcare disparities across the oncology spectrum of care. Systemic barriers, past harmful healthcare experiences and sociopolitical climate, and other impediments to accessing health care among others, combine to influence these disparities. TGD individuals undergoing gender-affirming mastectomy (\u2018top surgery\u2019) face unique challenges related to breast cancer risk assessment and screening. Currently, a patient can undergo top surgery without understanding how that procedure will affect their lifelong breast and chest cancer risk \u2013 and critically, without knowing if they carry predispositions that could fundamentally reshape their surgical decisions.<\/p>\n\n\n\n<p>A <a href=\"https:\/\/link.springer.com\/article\/10.1007\/s10549-026-08038-9\">new study<\/a> by researchers at Boston University Chobanian &amp; Avedisian School of Medicine has identified critical barriers that influence healthcare professionals&#8217; integration of cancer risk evaluation, within the context of gender-affirming mastectomy and pre-surgical planning. They include clear institutional accountability, harmonized evidence-based guidelines, standardized care pathways and embedded genetic counseling in multidisciplinary gender-affirming care teams. These findings mirror what patients reported in a previous <a href=\"https:\/\/ascopubs.org\/doi\/full\/10.1200\/PO-25-00037\">companion study<\/a> \u2013 that they lack clear information before and after surgery.<\/p>\n\n\n\n<div class=\"wp-block-image is-style-rounded\"><figure class=\"alignright size-full\"><img loading=\"lazy\" width=\"180\" height=\"138\" src=\"\/camed\/files\/2026\/07\/Kimberly-Zayhowski.jpg\" alt=\"head and shoulders of owman with long straight brown hair smiling\" class=\"wp-image-145849\"\/><figcaption>Kimberly Zayhowski, MS, CGC<\/figcaption><\/figure><\/div>\n\n\n\n<p>\u201cEvery person \u2013 transgender or cisgender \u2013 deserves clear information about their cancer risk and access to prevention. As it stands, trans people are diagnosed with cancer at later, more dangerous, stages than cisgender people,\u201d explains corresponding author <a href=\"https:\/\/profiles.bu.edu\/display\/21431412\">Kim Zayhowski<\/a>, MS, CGC, genetic counselor and assistant professor of medical sciences &amp; education at Boston University Chobanian &amp; Avedisian School of Medicine. \u201cWe&#8217;re calling on healthcare institutions and organizations to move beyond reliance on individual provider commitment and invest in the institutional infrastructure necessary to guarantee that trans patients receive comprehensive cancer risk information to make truly informed decisions about their care.\u201d<\/p>\n\n\n\n<p>The researchers conducted two parallel qualitative studies. In the previous study, they interviewed 16 transgender patients about their experiences with breast\/chest cancer risk assessment and top surgery. In the current study, they interviewed 20 healthcare professionals \u2013 primary care physicians, genetic counselors, oncologists and plastic surgeons \u2013 about current practices and barriers to breast\/chest cancer risk assessments for these patients.<\/p>\n\n\n\n<p>According to the researchers, this study showed that the problem is that healthcare institutions are not built to serve this population. \u201cMany healthcare professionals caring for transgender patients want to help, but there is currently no standardized conversation about breast\/chest cancer risk (e.g. what screening looks like after surgery or whether they should consider having more tissue removed based on a genetic or familial risk for cancer),\u201d adds Zayhowski.<\/p>\n\n\n\n<p>To help patients deal with specific barriers to breast\/chest cancer risk assessment in transgender care that have been identified, the team of researchers is in the process of developing <a href=\"http:\/\/chestcare.org\">CHESTcare<\/a> \u2013 Cancer &amp; Hereditary Risk Education &amp; Support for Transgender and nonbinary individuals \u2013 an online toolkit that integrates cancer and hereditary risk education with support for informed decision-making about breast\/chest cancer screening in the context of gender-affirming care. The toolkit includes resources for both patients and providers.<\/p>\n\n\n\n<p>These findings appear online in the journal Breast Cancer Research and Treatment.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Transgender and gender diverse (TGD) individuals experience significant healthcare disparities across the oncology spectrum of care. Systemic barriers, past harmful healthcare experiences and sociopolitical climate, and other impediments to accessing health care among others, combine to influence these disparities. TGD individuals undergoing gender-affirming mastectomy (\u2018top surgery\u2019) face unique challenges related to breast cancer risk assessment [&hellip;]<\/p>\n","protected":false},"author":903,"featured_media":145850,"comment_status":"closed","ping_status":"closed","template":"","meta":{"bu_prepress_billboard":"","_bu_prepress_primary_term":"","_bu_prepress_primary_term_manual":"Research"},"tags":[118,94,562],"bu-publication":[367],"medicine-article-category":[],"medicine-topic":[],"news-article-category":[385],"news-topic":[],"bu_edition":[],"media_type":[],"_links":{"self":[{"href":"https:\/\/www.bumc.bu.edu\/camed\/wp-json\/wp\/v2\/bu-article\/145848"}],"collection":[{"href":"https:\/\/www.bumc.bu.edu\/camed\/wp-json\/wp\/v2\/bu-article"}],"about":[{"href":"https:\/\/www.bumc.bu.edu\/camed\/wp-json\/wp\/v2\/types\/bu-article"}],"author":[{"embeddable":true,"href":"https:\/\/www.bumc.bu.edu\/camed\/wp-json\/wp\/v2\/users\/903"}],"replies":[{"embeddable":true,"href":"https:\/\/www.bumc.bu.edu\/camed\/wp-json\/wp\/v2\/comments?post=145848"}],"version-history":[{"count":1,"href":"https:\/\/www.bumc.bu.edu\/camed\/wp-json\/wp\/v2\/bu-article\/145848\/revisions"}],"predecessor-version":[{"id":145851,"href":"https:\/\/www.bumc.bu.edu\/camed\/wp-json\/wp\/v2\/bu-article\/145848\/revisions\/145851"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.bumc.bu.edu\/camed\/wp-json\/wp\/v2\/media\/145850"}],"wp:attachment":[{"href":"https:\/\/www.bumc.bu.edu\/camed\/wp-json\/wp\/v2\/media?parent=145848"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.bumc.bu.edu\/camed\/wp-json\/wp\/v2\/tags?post=145848"},{"taxonomy":"bu-publication","embeddable":true,"href":"https:\/\/www.bumc.bu.edu\/camed\/wp-json\/wp\/v2\/bu-publication?post=145848"},{"taxonomy":"medicine-article-category","embeddable":true,"href":"https:\/\/www.bumc.bu.edu\/camed\/wp-json\/wp\/v2\/medicine-article-category?post=145848"},{"taxonomy":"medicine-topic","embeddable":true,"href":"https:\/\/www.bumc.bu.edu\/camed\/wp-json\/wp\/v2\/medicine-topic?post=145848"},{"taxonomy":"news-article-category","embeddable":true,"href":"https:\/\/www.bumc.bu.edu\/camed\/wp-json\/wp\/v2\/news-article-category?post=145848"},{"taxonomy":"news-topic","embeddable":true,"href":"https:\/\/www.bumc.bu.edu\/camed\/wp-json\/wp\/v2\/news-topic?post=145848"},{"taxonomy":"bu_edition","embeddable":true,"href":"https:\/\/www.bumc.bu.edu\/camed\/wp-json\/wp\/v2\/bu_edition?post=145848"},{"taxonomy":"media_type","embeddable":true,"href":"https:\/\/www.bumc.bu.edu\/camed\/wp-json\/wp\/v2\/media_type?post=145848"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}