Bibliography

Below you will find a list of recruitment articles by clinical research recruitment experts. These articles are aimed at helping investigators and research teams develop adequate and appropriate recruitment plans and strategies to target specific population groups.

Many of these articles discuss targeting populations underrepresented in clinical research studies.

For additional assistance with your recruitment plan or strategy, please contact us at 617-638-8862.

Bibliography

  1. Aitken, L. and Gillis A, Jackson W. “Principles of Recruitment and Retention in Clinical Trials,” Research for nurses. Methods and Interpretations.  Philadelphia:  FA Davis, 2002. This article addresses recruitment in clinical trials for the general population and does not address targeting a specific population group. [Available online at BU, PMID: 14984070]
  2. Bailey, JM, 2004, Recruitment and Retention of Economically Under served Women to a Cervical Cancer Prevention Trial, Farrer, W., 1991. Clinical trials: Access and reimbursement. Cancer 67 6S, pp. 1779S–1782S. This article addresses underserved women populations. [Available online at BUPMID: 14991556]
  3. Blanton, S, 2006, Lessons Learned in Participant Recruitment and Retention: The EXCITE Trial, Walson PD. Patient recruitment: US perspective. Pediatrics. 1999;104: 619 – 622, Increase awareness on how to accomplish a successful clinical trial, This article does not address a specific ethnic group [Available online at BU, PMID: 17079752]
  4. Brown, DR, 2001. Recruitment, Engagement, and Retention of People Living with HIV and Co-occurring Mental Health and Substance use Disorders, R.A. Krueger. Moderating Focus Groups, Sage, Thousand Oaks, CA (1998), It discusses effective recruitment strategies of minority women to clinical research for cancer, This article addresses minority women [Available online at BUPMID: 15736822]
  5. Coatsworth, JD, 2006. Patterns of Retention in a Preventive Intervention with Ethnic Minority Families, Center for Family Studies. (1996). CFS Pre-Intervention Screening Instrument. Unpublished manuscript, University of Miami, Examines socio-demographic, child, and family-level correlates of retention patterns among parent participants, This article addresses minorities (african american and hispanic)  [Available online at BU,  PMID: 16532263]
  6. Comis, RL, 2003. Public Attitudes Toward Participation in Cancer Clinical Trials, American Cancer Society: Cancer Facts and Figures 2001. Atlanta, GA: American Cancer Society, 20018. Sheldon JM, Fetting JH, Siminoff LA: Offering the option of, Discusses the unavailability of appropriate clinical trials, This article does not address a specific ethnic group [Need to contact BU Alumni Medical Library librarian for access to full text PMID: 12610181]
  7. Davis, LL, 2002. Maximizing Retention in Community-Based Clinical Trials, Hunt, J., & White, E. (1998). Retaining and tracking cohort study members.  Epidemiologic Reviews, Dicusses retention strategies in community based clinical trials, This article does not address a specific ethnic group [Available online at BUPMID: 11901967]
  8. Dennis, BP, 2000. Recruitment and Retention of African American Elders Into Community-Based Research: Lessons Learned, C. Walzer, Spheres of justice: A defence of pluralism and equality, Basic Books, Wellesley, MA (1983), Discusses the low number of african american elders that are involved in clinical research, This article addresses african american elders [Available online at BU, PMID: 10692801]
  9. El-Khorazaty, MN, 2007, Recruitment and Retention of Low-Income Minority Women in a Behavioral Intervention to Reduce Smoking, Depression, and Intimate Partner Violence during Pregnancy, [Available online at BUPMID: 17822526]
  10. Gamble VN: Under the shadow of Tuskegee: African Americans and health care.  Am J Public Health 1997, 87:1773-1778. 27. Johnson AA, El-Khorazaty MN, Hatcher BJ, Wingrove BK, Milligan R, Describes the successful strategies of recruitment and retention of African Americans and Latinos in clinical trial to reduce smoking, depression and intimate partner violence, This article addresses low-income minority women  [Available online at BUPMID: 9366634]
  11. Feman, SP, 2008. Effectiveness of Recruitment in Clinical Trials: An analysis of Methods Used in a Trial for Irritable Bowel Syndrome, Contemporary Clinical Trials – March 2008 (Vol. 29, Issue 2, Pages 241-251, DOI: 10.1016/j.cct.2007.08.004)  [Available onlinePMID: 17919993]
  12. Frank, G, 2004. “Current Challenges in Clinical Trial Patient Recruitment and Enrollment,” Clinical Trial Media. [Available online (not available at BU) ] Viewed 15 April 2003. It is important to have a lot of volunteers to achieve a good clinical trial. This article does not address a specific ethnic group.
  13. Froelicher, ES, 2003. Strategies and Techniques for Enhancing Retention of Patients with Acute Myocardial Infarction and Depression or Social Isolation, Strategies and Techniques for Enhancing Retention of Patients with Acute Myocardial Infarction and Depression or Social Isolation, It reviews the literature and describe the methods used for retention of patients in a clinical study, This article does not specifically address any ethnic group but it talks about why minorities are underrepresented. [Available online at BU, PMID: 12894001]
  14. Goldberg, SKM. 2000. Innovative Techniques to address Retention in a Behavioral Weight-loss Trial, Bennett, G.A. (1986) Expectations in the treatment of obesity. British Journal of Clinical Psychology, 25, 311–312. obesity. InternationalJournalofEatingDisorders, 8, This article describes how clinical research has developed and improved over the years and why it has improved, This article does not address a specific ethnic group  [Available online at BUPMID: 15598664]
  15. Gorelick, P.B, 1998. The recruitment triangle: reasons why African Americans enroll, refuse to enroll, or voluntarily withdraw from a clinical trial. An interim report from the African-American Antiplatelet Stroke Prevention Study (AAASPS), Gavaghan H. Clinical trials face lack of minority group volunteers. Nature. 1995 Jan 19;373(6511):178, This article talks about why african americans choose to enroll or not enroll in a clinical research trial, This article addresses african Americans  [Available onlinePMID: 9549977]
  16. Graham, A, 2008. Online Advertising as a Public Health and Recruitment Tool: Comparison of Different Media Campaigns to Increase Demand for Smoking Cessation Interventions, Centers for Disease Control and Prevention (CDC). Cigarette smoking among adults–United States, 1998. MMWR Morb Mortal Wkly Rep. 2000 Oct 6;49(39):881–4, This article describes that one has to increase consumer demand for and use of cessation treatments, This article does not address a specific ethnic group  [Available online at BUPMID: 19073542]
  17. Grant, J. Recruiting and Retaining Research Participants for a Clinical Intervention Study, http://www.nlm.nih.gov/medlineplus/clinicaltrials.html.  This article describes strategies investigators can use to recruit and retain research participants in a clinical intervention study. This article does not address a specific ethnic group [Available onlinePMID: 10726244]
  18. Hinshaw, LB, 2007. Direct Mailing was a successful Recruitment Strategy for a Lung-Cancer Screening Trial [Available online at BUPMID: 17606183]
  19. Aitken, R. Gallagher and C. Madronio, Principles of recruitment and retention in clinical trials, Int J Nurs Pract 9 (2003), pp. 338–346, This article defines efficient ways to recruit participants for general clinical trials, This article does not address a specific ethnic group  Hunt, 1998. Retaining and Tracking Cohort Study Members, Criqui MH. Response bias and risk ratios in epidemiologic studies. Am J Epidemiol 1979;109:394-9, This article describes the different strategies one should use in clinical research, This article does not address a specific ethnic group  [Available onlinePMID: 14984070]
  20. Im, EO, 2004. Recruitment of Research Participants Through the Internet, Harrison RW III. Impact of biomedical research on African Americans. J Natl Med Assoc. 2001;93(suppl 3):6S-7S, This article talks about the difficulties in enrolling people in clinical research through the internet, This article does not address a specific ethnic group  [Contact BU Alumni Medical Library librarian for access PMID: 15520599]
  21. Jones, FC. 2001. Focus Groups With African American Adolescents: Enhancing Recruitment and Retention in Intervention Studies, Dr. Clark Jones from National Institute of Nursing Research (1 RO1 NR04080-01S1), Marion E. Broome (PI), This article talks about why african americans perceptions about recruitment and retention strategies for intervention studies, This article addresses african american adolescence  [Available online at BUPMID: 11326396]
  22. Junghans, C. 2008. Recruiting Patients to Medical Research: Double-blind Randomized Trial of “opt-in” versus “opt-out” Strategies, Wilkie T. Public opinion may force researchers to seek “opt in” consent for all studies, This article is about how to evaluate the effect of opt-in compared with opt-out recruitment strategies on response rate and selection bias, This article does not address a specific ethnic group  [Available online at BUPMID: 16157604]
  23. Kaakko, T. 2000. Recruiting Phobic Research Subjects: Effectiveness and Costs [Available onlinePMID: 11495403]
  24. Weinstein P, Milgrom P, Sanghvi H. Recruitment issues: errors of omission in dental research. J Dent Res. 1995 Apr;74(4):1028–1029. [PubMed], This article describes how to efficiently enroll subjects into a clinical trial, This article does not address a specific ethnic group  [Available online at BUPMID: 7782532]
  25. Katz, KS. 2001. Retention of Low Income Mothers in a Parenting Intervention Study, Guyer B, Martin J, MacDorman M, Anderson R, Strobino D. Annual Summary of Vital Statistics —1996. Pediatrics 1997; 100: 905 – 18, This article is about low income mothers that were recruited into a parental intervention study and how they responded to it, This article addresses low income mothers.  [Available online at BUPMID: 11478566]
  26. Macias, FM. 2007. Recruitment and Retention in Clinical Trials of the Elderly, Flicker 1997 [Available online at BUPMID: 17433930]
  27. L. Flicker and J.D. Wark, Recruitment strategies for randomised clinical trials in elderly Australians, Med. J. Aust. 167 (1997), pp. 438–439. View Record in Scopus | Cited By in Scopus (6), This article discusses the problems faced when doing a clinical research trial of the elderly, This article addresses the elderly [Contact BU Alumni Medical Library for access, PMID: 9364164]
  28. Mapstone, J, 2007. Strategies to Improve Recruitment to Research Studies, Department of Health, Cochrane Review Incentive Scheme 2008, UK, This article describes how to improve recruitment to randomized control clinical trials, This article does not address a specific ethnic group  [Available onlinePMID: 17443634]
  29. Maxwell, AE, 2005. Strategies to Recruit and Retain Older Filipino-American immigrants for a Cancer Screening Study, This article is about recruitment and retention of subjects in cancer prevention, screening, and treatment trials with subjects that are Filippino-American immigrants with low-income, This article addresses older Filippino-American immigrants.  [Available online at BUPMID: 15847243]
  30. Mody, Lona, 2008. Recruitment and Retention of Older Adults in Aging Research, J Am Geriatr Soc. 2008 Dec;56(12):2351-2, This article discusses how to involve older adults into clinical aging research, This article addresses older adults  [Available online at BUPMID: 19093934]
  31. NIH Office of Research on Women’s Health, 2003. Recruitment and Retention of Women in Clinical Studies (from NIH), Enhancing Recruitment of Women Into AIDS Clinical Trials: Lessons Learned Susan E. Cohn, M.D., M.P.H, This article discusses how to get women involved into clinical research, This article addresses women [Not available at BU, available from the NIH website,  p.40]
  32. Parra-Medina, D, 2004. Successful Recruitment and Retention Strategies for a Randomized Weight Management Trial for People with Diabetes Living in Rural, Medically Underserved Counties of South Carolina: The POWER Study  [Available online at BUPMID: 14702587],
  33. R.R. Wing, R. Koeske, L.H. Epstein, M.P. Nowalk, W. Gooding and D. Becker, Long-term effects of modest weight loss in type II diabetic patients [Contact BU Alumni Medical Library for access PMID: 3310940], Arch Intern Med 147 (1987), pp. 1749–1753. View Record in Scopus | Cited By in Scopus (242) This article discusses how to get people to take part in a randomized clinical diabetes research trial. This article addresses people with diabetes.
  34. Pirie, PL, 1989. Tracking and Attrition in Longitudinal School-Based Smoking Prevention Research, Phyllis L. Pirie Ph.D., *, Shirley J. Thomson M.A.†, Sue L. Mann M.P.H.‡, Arthur V. Peterson Jr. Ph.D.‡, David M. Murray Ph.D.*, Brian R. Flay D. Phil.§, 3 and J. Allan Best Ph.D, This article discusses school-based smoking prevention research, This article does not address a specific ethnic group  [Contact BU Alumni Medical Library for access PMID: 2740295]
  35. Robinson, KA. 2007. Systematic Review Identifies Number of Strategies Important for Retaining Study Participants, Szklo M, Nieto FJ. Epidemiology – Beyond the basics. Boston, MA: Jones and Bartlett Publishers; 2004, This article is a systematic review of studies with a primary focus on strategies to retain participants in health care research, This article does not address a specific ethnic group  [Available online at BUPMID: 17606170]
  36. Rogers, J 2007. Recruitment of Women Research Participants: The Women’s Health Registry at the University of Michigan [Available online at BUPMID: 11919061]
  37. Shuhatovich, O 2005. Participant recruitment and motivation for participation in optical technology for cervical cancer screening research trials, Volume 99, Issue 3, Supplement 1, December 2005, Pages S226-S231, This article is about how to recruit people to participate in cancer screening research trials, This article does not address a specific ethnic group  [Available online at BUPMID: 16143374]
  38. Staffileno, BA. 2006. Recruiting and Retaining Young, Sedentary, Hypertension-Prone African American Women in a Physical Activity Intervention Study, Healthy People 2010. 2000. Available at: http://www.healthypeople.gov. Accessed March 16, 2005, This article is about recruiting african american women into physical activity studies. It talks a lot about different methods one may use to recruit them, This article addresses african american women [Contact BU Alumni Medical Library for access PMID: 16699361]
  39. Steinke, EE. 2004. Research Ethics, Informed Consent, and Participant Recruitment, Pfizer Inc. Consumers: essential research partners. Pfizer J. 2002;6(3):10-17, This analysis explores ethical issues and challenges in participant recruitment, This article does not address a specific ethnic group [Contact BU Alumni Medical Library for access PMID: 15164670]
  40. Tansey, CM. 2007. Review of Retention Strategies in Longitudinal Studies and Application to follow-up of ICU Survivors  [Available online at BU,  PMID: 17701161]
  41. Vincent JL (2004) Endpoints in sepsis trials: more than just 28-day mortality? Crit Care Med 32:S209–S213, To review the literature on retention strategies in follow-up studies and their relevance to critical cares, This article does not address a specific ethnic group [Available online at BUPMID: 15118519]
  42. Taylor-Piliae, RE. 2007. Methods to Optimize Recruitment and Retention to an Exercise Study in Chinese Immigrants  [Available online at BUPMID: 17356444]
  43. Daunt, D. J. (2003). Ethnicity and recruitment rates in clinical research studies. Applied Nursing Research, 16(3), 189-195, The aim of this study was to develop and implement recruitment and retention strategies with Chinese immigrants in a Tai Chi exercise study, This article addresses Chinese immigrants. [Available online at BUPMID: 12931333]
  44. Wiemann, CM. 2005. Enhancing Recruitment and Retention of Minority Young Women in Community-Based Clinical Research, Section of Adolescent Medicine & Sports Medicine, Department of Pediatrics, Baylor College of Medicine, Houston, Texas, This communication presents eight key strategies learned in the recruitment and retention of 16- to 21-year-old urban women participating in a 12-month randomized clinical trial designed to promote STI screening to decrease the duration of untreated chlamydia and gonorrhea infection, This article is addressed to 16-21 year old urban women [Available online at BUPMID: 16338606]
  45. Zand, D. 2006. Predictors of Retention in an Alcohol, Tobacco, and Other Drug Prevention Study, This article talks about how to do a clinical research trial that involves alcohol tobacco and other drug prevention studies, This article does not address a specific ethnic group, This article does not address a specific ethnic group [Contact BU Alumni Medical Library for access PMID: 16492999]