Thank you for your interest in the ReSPECT Registry! The Registry can help you find studies at Boston University/Boston Medical Center (BU/BMC) that are looking for volunteers. The Registry is a tool to help you learn about and connect with clinical research studies.
Why join the Registry?
The Registry will help match you to research studies that you might want to participate in. There is a lot that we don’t know about how to prevent and treat health conditions or diseases. There is also a lot we don’t know about how to stay healthy. Some people may want to join a registry because they have had or know someone who has some particular health problem. Participating in research can help find a cure or better way to provide care.
How does the Registry work?
First you will fill out a brief survey (ReSPECT Survey). Then, if there are research studies at BU/BMC that might be of interest to you (based on your answers to the survey), the ReSPECT Registry staff will contact you. If you want to hear more about the studies, the Registry staff will have researchers who work on those studies contact you. They may give you more information and ask you some more questions. Then, you will be able to decide if you want to be in the study or not. As a member of the Registry, you will also receive occasional newsletters to tell you about studies at BU and BMC. We will also contact you annually to make sure your information is up-to-date.
How do I join?
Joining is a two-step process.
1) First, read the 2-page Information Sheet.
2) Next, fill out the online ReSPECT Survey. You can also call the Registry staff to do the survey over the phone at (617)414-1971 or toll free at 1(877)505-4455
The survey is about you and your interests in clinical research. We keep your information secure and use it to find studies that may be of interest to you. The Registry team may contact you about studies might be interested in. You can choose whether you want to be in or learn more about these studies.